PARTNERSHIPS AND SUPPORT

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Patient Advocacy Group Funding

2021 | 2020 | 2019

Amgen partners with patient advocacy groups for the benefit of patients and in a way that is true to the Industry Codes of Practice and Amgen's policy. Amgen is committed to making public the scope of its partnerships in the UK & Ireland in order to increase transparency. This includes stating the amount of funding that Amgen provides each year.

For the purposes of transparency and clarity, the following declarations include grants and sponsorships provided by Amgen Limited (UK), Amgen Ireland Limited, and also grants and sponsorships made by Amgen GmbH (Europe) to patient advocacy organisations based in the UK and Ireland.

Bowel Cancer UK

www.bowelcanceruk.org.uk

Bowel Cancer UK is the UK’s leading bowel cancer charity. It is determined to save lives and improve the quality of life of everyone affected by bowel cancer. In 2021, Amgen Ltd (UK) provided a grant of £5,000 to support the charity to produce and disseminate colorectal cancer health information.

Breast Cancer Now

www.breastcancernow.org

Breast Cancer Now is the UK’s most comprehensive breast cancer charity. It is steered by world-class research and powered by life-changing care. They exist to provide support for anyone affected by breast cancer. In 2021, Amgen Ltd (UK) provided a grant of £7,000 to support their Living with Secondary Breast Cancer Online programme. 

HEART UK – The Cholesterol Charity

www.heartuk.org.uk

HEART UK’s aim is to prevent premature deaths caused by high cholesterol. HEART UK is committed to raising awareness about the risks of high cholesterol, lobbying for better detection of those at risk and supporting health professional training. In 2021, Amgen Ltd (UK) provided sponsorship of £25,200 for membership of HEART UK’s CVD Collaborative Group, and a grant of £14,000 to support the charity’s Annual Conference. In addition, an honorarium of £252.50 was provided for speaker fees to participate in the National FH Nurse Forum Meeting.

ITP Support Association

www.itpsupport.org.uk

The ITP Support Association is a UK registered charity which aims to promote and improve the general welfare of patients, and the families of patients with immune (idiopathic) thrombocytopenic purpura. In 2021, Amgen Ltd (UK) provided a sponsorship of £10,000 for the ITP Roundtable Project for the development of ITP shared decision making materials and, in addition, a sponsorship of £10,000 in support of the ITP Support Association Convention 2021 to provide awareness and education for patients, caregivers (and HCPs) to help manage ITP and improve quality of life.

Leukaemia Care

www.leukaemiacare.org.uk

Leukaemia Care exists to provide vital care and support to all those whose lives have been affected by blood or lymphatic cancer. In 2021, Amgen Ltd (UK) provided a grant of £5,000 to support the charity’s expansion of their core services available to blood cancer patients and their families.

Macmillan Cancer Support

www.macmillan.org.uk

Macmillan Cancer Support is the UK’s leading charity supporting people affected by and diagnosed with cancer. In 2021, staff at Amgen Ltd (UK) held a coffee morning to raise funds for Macmillan Cancer Support and Amgen Ltd matched the amount raised in the amount of £575.

Myeloma UK

www.myeloma.org.uk

Myeloma UK is the only organisation in the UK dealing exclusively with myeloma.  The charity is dedicated to myeloma patients – making sure they get access to the right treatment at the right time.  It strives to improve standards of treatment and care through research, education and raising awareness of myeloma. In 2021, Amgen Ltd (UK) supported Myeloma UK with a grant of £30,000 to support a multiple myeloma core support programme plus a sponsorship of £10,000 for a team from AMGEN UK to participate in Myeloma UK’s London to Paris Bike Ride fundraiser.

Psoriasis Association

www.psoriasis-association.org.uk

The Psoriasis Association is the leading national charity and membership organisation for people affected by psoriasis in the UK.In 2021, Amgen Ltd (UK) provided £1,500 relating to corporate membership of the Psoriasis Association for 2021-2022, as well as £690 for speaker fees for an Amgen Ltd (UK) sponsored symposium held at the 30th Annual British Dermatological Nursing Group (BDNG) Conference.

Roy Castle Lung Cancer Foundation

www.roycastle.org

Roy Castle Lung Cancer Foundation is the only UK lung cancer charity dedicated to helping everyone affected by the disease.In 2021 Amgen Ltd (UK) provided a grant of £7,500 to develop route maps for people with lung cancer to provide an introduction on the role of mutation testing and genetic drivers in planning treatment for those with the disease.

The Royal Osteoporosis Society

www.theros.org.uk

The Royal Osteoporosis Society (ROS) is the only UK-wide organisation dedicated to finding a cure for osteoporosis and improving the lives of everyone affected by it.In 2021, Amgen Ltd (UK) provided a grant of £30,000 to support the ROS public affairs and advocacy plans for 2021; sponsorship of £2,750 towards five clinical network meetings; and £404 honorarium for an ROS representative to participate as an expert panellist at a virtual webinar  focussing on opportunities to reduce the risk of people experiencing an osteoporotic fracture.

Asthma and Lung UK

www.blf.org.uk/taskforce

The mission of the Taskforce is to prevent more people from developing lung disease, and to transform the care of people living with lung disease in the UK. It does this by promoting a strong voice and cohesive action. The Taskforce for Lung Health is a collaboration of organisations and individuals who have come together to improve the nation’s lung health. It is made up of patients, health care professionals, the voluntary sector and professional associations. An Industries Forum, which works alongside the Taskforce, includes representatives from pharmaceutical, diagnostics, devices and digital industries. In 2021 Amgen Ltd (UK) provided £15,000 in sponsorship to support the Taskforce to campaign for the implementation of policy recommendations around lung health and to raise awareness of lung disease, its causes and effects.

 

In 2021, Amgen Ireland Ltd made the following donation and sponsorship payments:

PO name Country Types of the support or services provided Description of the support or services Monetary value of financial support and of invoiced costs Non-monetary benefit for PO Fees for services paid
IRISH CANCER SOCIETY Ireland Financial support Sponsorship of the "Living Well with and Beyond Cancer" Conference 2021 €10,000
CORK ARC CANCER SUPPORT HOUSE Ireland Significant indirect support Sponsorship of the "Health and Wellbeing Webinar" for Healthcare Professionals in 2021 €3,000
ARTHRITIS IRELAND Ireland Financial support Donation to support the Arthritis Ireland website and information stands €10,000
IRISH CANCER SOCIETY Ireland Financial support Donation to support Volunteer Drivers, Nursing Services, cancer support line and survivor support service €6,666
IRISH CANCER SOCIETY Ireland Financial support Amgen matched funds raised by staff to support Volunteer Drivers, Nursing Services, cancer support line and survivor support service €3,000
IRISH SKIN FOUNDATION Ireland Financial support Donation to support the Irish Skin Foundation Nurse Helpline 2021  €20,000    
IRISH OSTEOPOROSIS SOCIETY Ireland Financial support Donation to support the IOS Website Redesign/ Patient Support Helpline  €65,000    
IRISH OSTEOPOROSIS SOCIETY Ireland Significant indirect support Sponsorship of the "She deserves a break" Osteoporosis disease awareness campaign  €366,060    

 

In 2021, Amgen GmbH (Europe) and Amgen Inc. (USA) also supported a number of international patient advocacy activities based in the UK. These are:

PNH Support

https://pnhuk.org

PNH Support aims to promote, protect and preserve the physical and mental health of those diagnosed with Paroxysmal Nocturnal Haemoglobinuria ("PNH") who reside in England, Wales and Northern Ireland (either permanently or temporarily) through the provision of support, education, advocacy and practical advice. In 2021, Amgen GmBH (Europe) provided an honorarium of £101 to learn more about the disease state, patient journey and the key topics of concern for patients.

FH Europe

www.fheurope.org

FH Europe – The Familial Hypercholesterolaemia Network is actively working together to secure early identification and diagnosis of familial hypercholesterolaemia (FH) to prevent early cardiovascular disease. In 2021, Amgen GmbH (Europe) provided grants of £40,000 towards the “FH paediatric screening” project and £30,000 towards “Many faces One Heart” project and, in addition, a sponsorship of £10,000 for an industry roundtable to discuss early identification of patients.

Myeloma UK

www.myeloma.org.uk

Myeloma UK is the only organisation in the UK dealing exclusively with myeloma.  The charity is dedicated to myeloma patients – making sure they get access to the right treatment at the right time.  It strives to improve standards of treatment and care through research, education and raising awareness of myeloma. In 2021, Amgen GmbH (Europe) provided sponsorship of £8,000 for a team of 8 riders to participate in the Myeloma UK London to Paris bike ride fundraiser.

 

All monies are shown in the currency paid.  The reported figure to the Association of British Pharmaceutical Industry (ABPI) is in sterling (GBP).